We are asking you to have your say, by:

The engagement has now concluded

  1. Contributing to the individual Ideas Wall for each of the six topic areas below. Please add any thoughts or comments to the quick links below:

2. Submitting case studies of work or experiences that address the six areas above, by considering: What is working well? What needs to change? What should we think about for the future?

3. Answering our benchmarking survey - If you don't have a case study but would like to share an idea, comment, suggestion or any other feedback about these six themes, please add a post it note to our Ideas Wall each theme has its own wall for you to share your thoughts on.

4. Sharing this page on social media or with your colleagues in health and social care.

  1. Contributing to the individual Ideas Wall for each of the six topic areas below. Please add any thoughts or comments to the quick links below:

2. Submitting case studies of work or experiences that address the six areas above, by considering: What is working well? What needs to change? What should we think about for the future?

3. Answering our benchmarking survey - If you don't have a case study but would like to share an idea, comment, suggestion or any other feedback about these six themes, please add a post it note to our Ideas Wall each theme has its own wall for you to share your thoughts on.

4. Sharing this page on social media or with your colleagues in health and social care.

Submitting your case study

Please tell us which topic and focus area your case study relates to:

  1. Experience and development of the specialist workforce and preparation for roles.
  2. Data capture and use in nursing and midwifery practice:  how is data used now and how should it be used in the future. 
  3. Changing the practice of nurses and midwives through use of data and technology and addressing barriers.
  4. Digitally enabling and upskilling the whole nursing and midwifery workforce.
  5. Enhancing person centred practice through use of data, information and technology.
  6. Experience and use of genomics in nursing and midwifery practice.

Please consider using the following titles in your case study - this will help us in analysing your feedback for our interim report.

  • What is working well?
  • What needs to change?
  • What should we think about for the future?
Thank you for sharing your story with us.
CLOSED: The platform has now closed for new additions.

  • judith.dando

    by Judith, over 1 year ago

    From niche to necessity: genomics in routine care

    Case-study submitted by Phillips Ives Review PMO on behalf of Tracie Miles RGN, PhD, Associate Director of Nursing and Midwifery, NHS South West Genomic Medicine Service Alliance.

    The Genomics Education Program (GEP), in partnership with NHS England and NHS Improvement and the RCNi, have delivered a series of three introductory webinars exploring genomics, its growing use in healthcare and the opportunities it brings for nurses, midwives and health visitors. The webinars (which are being sourced from the GEP and will be shared with PIR team) are aimed at those with little to... Continue reading

  • Point of Care Pharmacogenetics in Routine Clinical Practice

    by John_McDermott, over 1 year ago

    Introduction: Medicines are the most common therapeutic intervention in healthcare, yet their effectiveness and safety show considerable inter-personal variation. There are many reasons for this, but there is an increasing awareness that response to medicine is affected by an individual’s genetic variation, a concept known as pharmacogenetics. Access to pharmacogenetic data at the point of prescribing could lead to improved medicines selection, leading to improved outcomes and better use of scarce healthcare resources. This is particularly true in the acute setting, where results would be required in a rapid timeframe to inform management.

    Over the next 3-5 years it is... Continue reading

  • Digital Diabetes from a Patient Perspective

    by Beth, over 1 year ago

    My personal experience of wearable technology began when I was 10 years old, as a Type 1diabetic from the age of 10 weeks, I was provided with my first Insulin Pump tomanage my diabetes in 2007.

    In 2019 I then transferred to my first Continuous Glucose Monitor (Freestyle Libre) and I am now on the Medtronic CGM which uses Bluetooth to interact with the compatible insulin pump to adjust my insulin according to my blood glucose levels. The blood glucose results are also mirrored in a smartphone app, enabling the user to view their results on their phone, rather than... Continue reading

  • Welsh Nursing Review and discussion

    by Fran Beadle , over 1 year ago

    What is working well –


    office 365 and Microsoft teams has been a game changer in terms of working on shared documents BUT it is limited by our familiarity with the system and the outdated/ slow systems we are using to access it.. there are multiple servers across multiple sites and they have all moved over to office 365 at different times..


    For more junior staff, office 365 and teams has been great for accessing training from home and enabling them to attend meetings but they are limited by their access to suitable IT equipment at home and in our... Continue reading

  • Using point-of-care scanning to enable real time data capture and improve patient safety

    by GS1 UK, over 1 year ago

    This case study responds to the following points outlined above.

    • Data capture and use in nursing and midwifery practice: how is data used now and how should it be used in the future.
    • Changing the practice of nurses and midwives through use of data and technology and addressing barriers.
    • Enhancing person centred practice through use of data, information and technology.

    The full case study response is outlined below:

    Using point-of-care scanning to enable real time data capture and improve patient safety

    Background

    Nurses and midwives collect large volumes of data across various different touchpoints throughout a patient’s care journey. However... Continue reading

  • vivianjimenezocampo@gmail.com

    by VIVIAN JIMENEZ OCAMPO, over 1 year ago

    Aprendizaje basado en retos: una experiencia de innovación para resolver problemas en Enfermedades Raras

    Vivian Fernanda Jiménez Ocampo/ Enfermera, Máster en Enfermedades Raras, PhD. Profesor, Facultad de Enfermería y Rehabilitación, Universidad de La Sabana. vivianjo@unisabana.edu.co


    Las enfermedades raras (ER) son condiciones de salud complicadas que son difíciles de manejar en múltiples niveles. Hay más de 6.000 enfermedades y aproximadamente el 80 por ciento de estas son genéticas y el 95 por ciento de ellas ni siquiera tiene un tratamiento aprobado. La escasez de datos disponibles determina principalmente un escenario intrincado incluso para los médicos especialistas, lo que a su vez... Continue reading

  • The role of a neurogenetics clinical nurse specialist in transforming neuroscience nursing by embedding genomics in clinical practice

    by Mark Mencias, over 1 year ago

    Background:

    Neurogenetic conditions, although individually rare, are common in certain subgroups in neurosciences such as, but not limited to the following: neuromuscular disorders, young-onset movement disorder, and mitochondrial disorders. CNS' and APNs in neurosciences are perfectly positioned to offer genomics and therefore embedding it in the nurses' clinical practice is imperative to deliver modern, evidence-based and holistic nursing care. However, neurosciences CNS' and APNs in UK may not necessarily have the appropriate knowledge, skills or competence to facilitate genomics conversation, genomics testing, return of genomic test results, and genomic counselling. Therefore, a neurogenetics clinical nurse specialist was created to embed... Continue reading