Patient and Carer Survey

This short survey aims to find out about your experiences of the outpatient follow-up service you received following your cancer diagnosis and treatment.

Your follow-up may have been referred to as personalised stratified follow up (PSFU), supported self-management or open-access follow up.

PSFU is a way of managing follow-up care if you have finished treatment for cancer. Instead of routine hospital appointments, you are supported to self-manage with:

Information about symptoms to watch for
Easy access to your care team if needed
Regular tests or scans (like PSA blood tests for prostate cancer)
Remote check-ins (by phone or email)
A personalised care and support plan (PCSP) to guide your recovery
Health and wellbeing information

This survey is anonymous to enable you to share your honest feelings about your experience.

Please ensure you do not enter any personal identifiable details in the free text answers such as names of GP practices, hospitals, staff or any locations.

If you want to tell us more about your experience, please email us and we will get back to you.

We appreciate your time taken to complete this survey.

Have you had your final treatment?

Select option

Health and Wellbeing information

Covers emotional wellbeing, managing side effects, financial advice, returning to work, and lifestyle changes.
Provided before, during, and after treatment.
Delivered through workshops, digital platforms, and written materials

Were you provided with clear information about managing your health after treatment?

* required

Select option

Personalised Care and Support Plan (PCSP)

A Personalised Care and Support Plan is a written plan created with the person receiving care, not just for them. It is based on conversations between the person and their healthcare team about:

What matters most to them
Their health and wellbeing needs
Their goals and preferences
The support they need to live well

Did you receive a Personalised Care and Support Plan?

* required

Select option

Not including your end of treatment appointment, have you talked with a Clinical Nurse Specialist regarding your cancer, or yourself? 

* required

Select option

Follow Up pathway

A follow up pathway for cancer is a personalised plan for your care after primary treatment is complete, designed to detect an signs of a recurrence, monitor side effects, and support overall health and quality of life.

These pathways, often called are tailored to the individual's cancer type and personal needs and can include professional-led follow up (regular appointments) or personalised stratified follow up (PSFU) or supported self-management.

Key components of PSFU or supported self-management include :

information about warning signs
rapid access to the cancer team
and appropriate surveillance tests

Were you informed about which type of follow up pathway you would be on?

Select option

Were you asked if you were happy to be put on that follow-up pathway?

Select option

Are you satisfied with the after care and monitoring of your cancer ?

Select option

Do you feel confident that tests you may need will be arranged and results checked by your specialist team?

Select option

Do you feel confident in managing your health within this follow-up pathway?

Select option

10.

Do you feel confident what to report and how to seek advice about your cancer ?

Select option

11.

Do you feel you can easily contact a member of your specialist team to discuss anything?

Select option

12.

Do you feel able to get on with your life?

Select option

13.

Were you satisfied with the personalised follow-up care you received?

Select option

14.

Have you seen your GP about anything to do with your cancer after your treatment was completed?

Select option

15.

Is there anything you would like to tell us?

If you would like to take part in a telephone or online interview to let us know more about your experience whether positive or negative please contact us at scwcsu.c-ltadmin@nhs.net